The picture I have here is one of my favorites of Jackson and it reminds me of one funny story about him.
Take a moment to notice the tube across Jackson's face in the picture. There were a few times when he did not have this apparatus, but most of the time he needed that little extra help. It was taped on in an effort to keep the two little tubes in his nose so that he always had a steady supply of oxygen.
Well, apparently he didn't think he needed the extra help. One of the games he would constantly play with us (and with all of his nurses) was to pull the tubes out of his nose and find a way to shift them to the side just enough so that they would stay out. When we first saw it, we were worried that he would not get enough oxygen, but we finally realized that he was doing it on purpose and that it was a fight we were never going to win.
It is little things like these that I like thinking of when I think of Jackson. Even though he was so small and he couldn't speak to tell us what he was feeling, he still found ways to express himself and that was almost always fighting against all the expectations that doctors and medical staff laid in from of him.
When you think of Jackson tomorrow on his birthday or long into the future, please see him pulling the tubes out of his nose with a smirk on his face or popped one foot out from under a blanket every time we tucked it in tightly. I think that's how he wants us to remember him so we only honor him by doing so.
Take a moment to notice the tube across Jackson's face in the picture. There were a few times when he did not have this apparatus, but most of the time he needed that little extra help. It was taped on in an effort to keep the two little tubes in his nose so that he always had a steady supply of oxygen.
Well, apparently he didn't think he needed the extra help. One of the games he would constantly play with us (and with all of his nurses) was to pull the tubes out of his nose and find a way to shift them to the side just enough so that they would stay out. When we first saw it, we were worried that he would not get enough oxygen, but we finally realized that he was doing it on purpose and that it was a fight we were never going to win.
It is little things like these that I like thinking of when I think of Jackson. Even though he was so small and he couldn't speak to tell us what he was feeling, he still found ways to express himself and that was almost always fighting against all the expectations that doctors and medical staff laid in from of him.
When you think of Jackson tomorrow on his birthday or long into the future, please see him pulling the tubes out of his nose with a smirk on his face or popped one foot out from under a blanket every time we tucked it in tightly. I think that's how he wants us to remember him so we only honor him by doing so.
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